Bal's Sky Dive for SMA UK

关于此 捐赠活动机会

When my daughter Jazmin was about 18 months old, we started to feel that something wasn’t quite right. It’s hard to describe, just a quiet instinct that as a parent you can’t ignore. What followed were years of appointments, questions, and seeing specialist after specialist, searching for answers that never seemed to come.

Eventually, we were given a diagnosis at age 9, that Jazmin has SMA Type 3, a rare genetic condition that causes progressive muscle weakness. Watching your child face challenges like this, things most of us take for granted is something that changes you forever. 

Jazmin is now 16 and over the last 3 years had also been receiving treatment for Leukaemia which she has finally completed all treatment for. She is back to focusing on exams and coping daily with the trials of having SMA.

I’m taking on a skydive on 28th June 2026 to raise money for SMA UK, a charity that supports families just like ours. They provide vital emotional and practical support, fund research, and work to improve access to care and treatment. For families navigating the uncertainty of SMA, that support means everything.

If you’re able to sponsor me, no matter how small, it would truly mean the world, not just to me, but to my daughter and so many others living with SMA. Your support helps ensure that families don’t have to face this journey alone.

Thank you so much for reading and for any support you can give.